1. I won't sacrifice who I am.
As my friend Kerri says, "Diabetes doesn't define me, but it helps explain me". I've had to make some adjustments to my goals and ambitions over the years because of chronic illness, but I won't allow it to to overtake my identity. I get sick, but I am not the "sick guy". I have pain, but I won't let pain consume me. It explains a little about what I do, but not who I am.
So who am I?
I'm a loving and compassionate man who cares about his family and the welfare of those around him.
I'm a creative person driven by a desire to make things in this world that both uplift and endure (HealingWell is one of those things).
I'm someone people can trust and count on.
Those traits, I hope, are who I am. I am not my illness.
2. I won't sacrifice time with my family.
It's not easy, especially as a married father of 4 young kids. For me, time is precious. I'm as busy or busier than most dads I know. I work full time, then after work I put in several hours each day to keep HealingWell running. I also serve in my church which can take up a lot of extra time. I try to pace myself but there isn't always a lot of time left over to rest and recuperate, much less spend quality time with my family.
But I try.
I try to make time, even if I'm not feeling well. To me there is nothing more important than being a good husband and father.
I try even though I sometimes fail.
Being good father means spending time with them, encouraging them, inspiring them, and loving them. My kids know that I am sick more than their friends' dads, but they don't feel any less loved because of it. It's funny but I probably love them more because of it.
3. I won't sacrifice my faith in God.
I made this decision soon after my diagnosis after looking more deeply at what I really believe. Some people ask why did God let this happen to me? I know I did. At least in the beginning.
But eventually I turned it around. Now I ask what does God want me to learn from this experience? How can I become a better person through it? How can I use my experience to help others? If anything, my faith in God has grown since I was diagnosed and my family has been blessed because of it.
What are you unwilling to sacrifice with chronic illness?

Love this! 3 of my biggies on my list too! I really struggle with #2 when my pain is high. As a mom of a 2 1/2 year old, she thinks I'm her personal jungle-gym so finding a way that we can play together is sometimes a challenge but its worth it!
ReplyDeleteWonderful article! I totally agree with your approach: we have to pick and choose what's important to us. I don't spend as much time out socializing as I'd like, but when I do, it's because I've made a concious choice and am willing to deal with the consequences. God, family, friends and yoga I won't sacrifice.
ReplyDeleteI should have added "mindfulness", which would include yoga. I think living in the present is especially important.
DeleteI live with an invasive, breast cancer diagnosis... actually, two breast cancer diagnoses. I've been no evidence of disease for 17 years now, but I live the with knowledge that, with breast cancer, there is no cure. Any ache or pain or headache could be the harbinger of a recurrence, and any of these that don't go away in a day or two or a week require pokes and prods and scans and x-rays.
ReplyDeleteWhat do I refuse to sacrifice? I refuse to sacrifice one minute more of my life than the cancer diagnosis has already taken from me. If I'm not living my life to the fullest, despite a cancer diagnosis, I may as well be dying from it, whether the cancer is active or not. I refuse to worry about it. My philosophy: I could be hit by a bus tomorrow and be just as dead (and if you think that is ridiculous, it unfortunately happened to one of my survivor friends). Cancer has given me the gift of many new friends, and an appreciation of each new day that I didn't have before. Each celebration is a bit more special than it used to be. And birthdays? Keep'em comin'! Life is good!
Hi! I'm your newest follower. :)
ReplyDeleteI found you site at another site I follow: Felicia Fibro.
I love the three things you picked out..... I would pick the same three!!!
I was dx with Fibromyalgia & Chronic Fatigue in 2004. It's been a long road.....
I'm heading to check the rest of your blog. :)
www.amee2.blogspot.com
I totally agree with your big three, but I would add a fourth.
ReplyDeleteI refuse to sacrifice my sense of humor. Humor has gotten me thru some dark and painful days. I can choose to laugh or cry. There are already too many tears in this world!
That is certainly something worthy of including on this list :)
DeleteThese three are really big on my list too. Unfortunately number 2 is very difficult for me. Almost all of my family lives about an hour away and if I make the trip over there to see them, I will indefinitely have a fibro flare. I handle this usually by taking some pain medicine with me.
ReplyDeleteI really like this a LOT! What do I refuse to sacrifice? My personal power. The power to make decisions. The power to care for my family (which includes the power to ask for help when I need it). The power to learn all the time. The power to be me, and NOT my illness... I am not Lyme Disease - I am Donna, and I have Lyme Disease. Took me a long time to get a handle on that!
ReplyDeleteI have never thought of it that way. I sacrifice everything and anything to not feel like crap. Maybe, I should re evaluate some things in my life.
ReplyDeleteI think you must be an amazing husband and father, Peter :) You seem so focused and genuine. It's very refreshing!
ReplyDeleteWhile I wasn't raised with religion, I am still a very spiritual person. So one of my 3 would definitely be not giving that up. I require a lot of self reflection and "me" time where I meditate or just listen to soothing, relaxing ambient music. It helps keep me sane, and happy.
I think I do pretty well to not let this illness define me. This last year it sure has ruled my life though. I'm still learning how to pace myself and cope with this new reality. Through humor and trying to help others, I learn more about this illness and how to cope with it myself.
Wow, I'm so glad it has struck a chord with each of you. I believe it does empower us when we realize we do have a choice in how chronic illness affects us, especially when it comes to the most important things in life.
ReplyDeleteShannon, I think you give me too much credit. I do what I can and keep trying but just like most people I fail at being a good husband and father. But I keep trying and that's what is important. :)
"Fail" is one word, like "hate", that is completely not in my vocabulary anymore. Hate is a very strong word for me (I'd like to think for most people, too). I would rarely use that word on purpose for anything at all (hate). So too with Fail now. How can you fail at something you keep working on? :) A work in progress cannot be a failure in my opinion.
DeleteI won't sacrifice my belief that there is a kind, compassionate man out there who will want to marry me and love me despite my diseases. It's very hard sometimes to keep the faith (like at this moment) but I know it will happen.
ReplyDeleteI won't give up participating in my 11 year old Daughters life. I am her GS leader, volunteer for her school and volleyball team, assist in school projects, never miss a play, muscial performance or game.
ReplyDeleteI won't let Fibro consume me in a negative way.
I won't let myself give in to the unknown. Why me? What will work? How bad will it get?
I use the energy to fight this by helping myself and others. I created a blog (for myself) a journal for the fibro thoughts. I started a small online support group so we can offer and have a shoulder when needed. I research and research as a way to help educate myself and others.
Maybe that is why I have been dealt this hand.
I love this and thank you for sharing this with all of us. You're an inspiration! Linda
ReplyDeleteThank you! I think I am more inspired by our community :) ~ Peter
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