Getting Sick When You're Sick


Not much about chronic illness surprises me anymore.  After 17 years, I've come to know all the familiar ups and downs, flares and remissions.  Don't get me wrong, it's still not easy and I struggle as much as anyone else.  It's just that there are few symptoms I haven't seen before.  I know my symptoms and what they indicate better than most doctors do.  But there is one thing that happens that always seems to catch me off guard. Getting sick.

That's not all that unusual, right?  Most people don't anticipate it.  We don't like the inconvenience of missing work or school, slowing down and departing from our normal routine, taking medicine, visiting the doctor, and resting our bodies to get well again.  But it's different if you are already sick!
"I wish I could just have the flu like I used to." 
It sounds a wrong, but I can't tell you how many times that thought or something like it has crossed my mind when I get sick. You see when I get sick with a common cold, it's not just an inconvenience accompanied by the usual aches and pains.  It's an ordeal, a physical trial, a test of endurance.  One that I'm usually not prepared for.

One of the symptoms of autoimmune diseases is fatigue.  I won't bore you with all the medical reasons why fatigue occurs with autoimmune disease, but when your body is attacking itself it gets worn out.  "I'm feeling tired" doesn't begin to describe the depth of fatigue associated with these illnesses.  "On the verge of exhaustion" is probably a better description.  It is prolonged, unending fatigue.  When your body is tricked into attacking itself, it doesn't quit.

When I get sick with a common cold, which is often with 4 little kids bringing home germs from school and elsewhere, I feel like someone struck with pneumonia.  If I had any energy left in my reservoir to begin with, the cold virus like a thief in the night snatches it away and there's no getting it back.  Any symptoms seem to be exaggerated ten fold.  When this happens, I eventually raise my white flag of surrender and try to endure it as best I can and hope that it does not trigger a bigger flareup.  Probably not the best strategy.  I'm open to suggestions folks!

There isn't much we can do to avoid getting sick.  Let's face it, we can eat healthy, be vigilant about exercise, take our Vitamin C, obsessively use hand sanitizer, and we'll still get sick!  Besides learning to cope with it, probably the biggest challenge of getting sick is helping others understand how it can dramatically affect the health and wellbeing of those of us already coping with chronic illness.  If they can better appreciate it, we can help them know when and what kind of help we need.  This applies to everyone around us, including your spouse, your boss, your parents or children, your friends, and your neighbors.

One of the most common dilemmas is how to help others understand.  My wonderful wife knows when I get a cold virus or some other bug I often get very sick.  She tries to help me as much as she can, as well as tackle her usual daily responsibilities and activities.  She knows this because she has had years of experience of living with me.  She's the exception.

Many others don't get it.  It's hard to know what to tell them when I get sick.  Do I tell them I just have a cold?  Or do I tell them I'm in the midst of a flare?  The first leads them to believe I'm just inconvenienced but generally doing okay.  The second tells them I'm struggling but it exaggerates my real condition.  The truth is I do have a cold, but I'm actually quite sick!

How do you cope with getting sick when you're sick?  I'm curious to know what works for you.  What do you tell others when you get sick?



12 comments:

  1. Another thing about having a chronic illness and then getting sick is that sometimes your meds get in the way- See http://bit.ly/ijXvJb

    Usually, when I have a flare the only people that really know are those closest to me. People who can't really relate to or know how difficult an invisible illness can be are just not worth telling.

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  2. Hey, did I write this post and not remember it?? You hit the nail on the head with this post! Getting "sick" for the chronically ill...what an ordeal. I have hand sanitizer in my mudroom so people can use it before they even come in... I don't work, I homeschool my son...But it's amazing how those germs can still find their way in. "Sick" for us can be deadly. It sounds so melodramatic, but it's SO true.

    Great post!!

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  3. Thanks Hayzell and Kerri! What I didn't mention is that I was sick while writing this post. Amazing it came out as coherent as it did :)

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  4. Hi Peter
    Thanks for visiting my blog. I knew a little about Crohn's disease, but I had no idea of the impact of a cold.
    Have you looked at the group below?
    Take care
    KOB


    http://www.wellspouse.org/

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  5. I was diagnosed with Crohns Disease when i was 8 years old, and i can definately relate to the fatigue issue that was in your article. I am now a junior in highschool, and I take at least a nap a day on the bus. Since I have had this disease for so long, i am having difficulty telling if I actually I am tired, or if it just all in my mind. Have you ever came across this problem before?

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  6. Not saying this is what you should do, but FYI I have been having some success with the fatigue part doing 24-36 hour water-only fasts. It always relieves all my symptoms for 2-3 days afterwards, I don't know why and my GI doesn't either, but for me it's a godsend. It's not easy but it's mostly psychological, going a day without food is something our ancestors did very often and it's probably something our bodies learned to make use of. Uninterrupted access to unlimited food is a new thing in human history, so one could make the argument that periodic fasting is our natural state and that eating every day our entire lives is not.
    Anyway, that's just what has helped me, but as with anything you should educate yourself and make your own decision about it before trying it.
    I have Crohn's and am on methotrexate and infliximab infusions.

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  7. KOB, thanks, I'll check out that site.

    Fatigue is a big issue for me. I think the longer you deal with it, the more familiar you become with it and if you are really tired or not.

    Funny, fasting has always aggravated my Crohn's, but I'm glad it works for you. It does give your body a rest.

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  8. Wow what a great discription of the common cold is for us with chronic illnesses. I have yet to be diagnosed. I do have chronic myofacial pain in my upper back for the last five years. Just this past
    April the pain mysteriously appeared in my low back and legs baking it impossible to walk. I am somewhat better now but very frustrated. Doc thinks I my have Fybro and that's what it feels like. I've often tried to explain the common cold to others for me and I'm not sure they understand.

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  9. Your post came at a perfect time. I was just thinking this morning that I'm feeling a cold coming on. My first one since being diagnosed with UC and a coronary blockage last spring. I feel like I've been run over by a truck. Before all this craziness hit me, I was an endurance athlete and now I'm too tired to do more than 10 minutes walking slowly on the treadmill. Like someone said above, I too wonder sometimes wonder if I'm really this tired or if its become a mental thing for me. Right now, I'm going to take a nap and ponder the issue. ;-) Tam (sorry, I can't figure out how to post anyway other than "anonymous")

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  10. Good evening'
    DITTO!! on the getting sick while being sick. i have crohns, 4 years now. for 2 years, (yes i know much to long) i have had what i thought was a sinus infection. I finally gave in to my PCM and went to an ENT, low and behold after a sinus endoscopy..i have a nasopharangeal mass, and on top of that, a strepococcal & pneumoniae infection, very resistant to abx. therapy. I have been feeling miserable, and now i sort of know why.am on strong abx. and waiting for a biopsy of mass. I blame it on the biologics i took not long ago, and here i am,sick,and feeling like....again!
    thanks for listening...Theresa from Orlando

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  11. I have had crohn's for 18 years, I'm 30 years old and after reading this and crying a little. I don't feel as alone. Fatigue is such an issue for me and impossible to explain to others. I also have AS (a form of arthritis). I have so many dreams and hopes for the future, but doubt I will ever have the energy. I do have a wonderful, understanding husband and 2 beautiful kids. Thanks for your blog! Diana in Memphis

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  12. Wow...yes...you hit the nail on the head! I posted something almost to that exact effect not long ago about getting sick when I'm already sick not being fair. Thank you for your poignant words and encouragement without ignoring the reality of chronic illnesses.

    Christina (Sjogrens/Lupus = My twins)

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